10.31.08
Sorry it’s been awhile…quick update
Sorry folks, we’ve been swamped. Here’s a quick update. Blue Cross Blue Shield decided that Karen no longer needed to be at Baptist a few days ago…despite the doctors feeling otherwise. They sent her home to be cared for by a home health care nurse. We assumed that meant that a nurse would come daily and hook up her IV antibiotics. We were shocked to find two moving box sized boxes of antibiotics, parts and pieces, and a pump on our porch when we got her home. We were even more shocked to learn that we would be responsible ourselves for mixing the “dangerous” antibiotics and administering them ourselves. I was more than shocked…I was furious. I made lots of contacts with various health care professionals, all of whom said it was not only dangerous, but also irresponsible of BCBS to expect us to do that on our own. RNs aren’t even allowed to mix drugs in a hospital setting. Insurance thought it was ok for us to mix them on our kitchen table because they are too cheap to pay for a nurse to come and do it. Fact is, a nurse shouldn’t even be doing it in the home. I did my best to keep my cool and eventually met with our infectious disease doctor at Baptist. He thought it was unacceptable as well, so he prescribed an oral dose of the more involved antibiotic and told us to continue the more simple IV drug on our own. I’ve enlisted some folks to bark up BCBS tree. They’ll hear more from the Nikazy’s. Karen was very ill with a life threatening infection and they had us take her life into our own hands here in our home because they were finished paying for her. Believe me, I would have gladly paid out of pocket for Karen’s life had I known what the deal was.
Max and Kate are doing awesome! Max is completely unattached at this point except for basic monitoring devices. He’s gotten very strong and is allowed to come out of his incubator now whenever we want him. Kate still has her vapotherm, but is getting much better. She has fewer apnea “spells” each day. We’ve been able to hold her a few times. A few days ago nurse Bernie wrapped Max and Kate in the same blanket, skin to skin, and let us hold them together. They were so content to be side by side again.
I’ve never Izzy happier than she is now. She’s very content being back at her house with her daddy … AND HER MOMMY.
Tons more pictures very soon. Keep checking back.
10.27.08
More pics
10.25.08
Quick update
Max sleeping peacefully
Izzy meets her little sister Kate
Still Chad here: Karen’s hands are still too swollen to type. Everyone is doing just fine. Karen is still being pumped full of antibiotics for the listeria. One of our nurses, who has been here 30 years, said it’s the first case of listeria she’s ever seen. Our NICU nurse, who has been here 22 years, said the same. Even Dr. Lombardi thinks its very strange. There are only 2500 cases of listeria a year…and 500 of those cases end in death. Don’t be alarmed; Karen is getting much better. It did NOT pass along to Max and Kate so no worries there. If it had gone undetected much longer though it’s very possible that Izzy and I would have been left alone. Thank you God for protecting our family! (ps. No sooner did I post this than the Infectious Disease Dr. walked in. He nows says they aren’t 100% it’s Listeria. He said it looks like it, but they can’t say for sure so they are sending her lab stuff off to the “state” ie CDC. They are going to do some testing on Karen’s heart this weekend to make sure it’s not infected. He said when she goes home she’ll have a pikk line with 2-6 weeks of IV antiobiotics. Karen is taking the news in stride. Max and Kate are fine.)
Both babies are doing exactly what 31 week gestatational age babies should be doing. We’re going to have our hands full with Max. He fusses almost non-stop. He has a squeeky little fuss – it’s almost funny. Kate is very relaxed – too relaxed sometimes. She having some apnea problems. When she gets too relaxed and falls into too deep of a sleep she “forgets” to breathe. In most cases she remembers herself and wakes herself up. Some time the nurse wakes her up though; that’s very annoying to Kate. I’d rather hear her crying though than have her not breathing. The NICU drs. say they are both doing great. The apnea is a very normal thing for preemies.
I’ve decided that nurses are angels. Karen’s antipartem nurses have all become her friends. They’ve taken such good care of her. The NICU nurses, drs, and therapists are incredible. That’s the most stressful environment I’ve ever been in. Don’t misunderstand, it’s a very state of the art and “peaceful” place, but there is underlying stress everywhere. Beeps, buzzers, and alarms are going off nonstop. All of them mean that a baby needs to be checked on. Each nurse has only 2 babies to watch, so Max and Kate are monitored non stop. We’re very blessed to have a couple of the larger babies in the NICU right now. Imagine that – 4lbs being large.
Thank you for your continued prayers. We still need them.
10.23.08
Max and Kate born October 22!
first picture of them together, moments after delivery. This pic was taken right outside the operating room doors just prior to the high speed trip down the hall to the NICU.
Chad: Hi ya’ll, this post won’t be as eloquent as perhaps it should it be, but you’ll have to forgive me…I’m a little whipped. Max and Kate were born in that order at 3:27 and 3:28 respectively today. Max weighed 4.1 pounds and Kate weighed 3.11 and 3/4 pounds. We were thrilled with how big they are. Both are resting in the NICU now under the constant supervision of the staff nurses and doctors. We’re very impressed with the treatment they are receiving. Both are breathing on their own as best as can be expected of 31 week old babies. Kate is doing a little better than Max. That was to be expected as well due the “wimpy white boy” syndrome we kept hearing about. White males tend to struggle a little more early on. No cause for alarm though…both are right where they should be.
Karen is a machine. She did great! So many of the nurses were beside themselves with excitement for their favorite patient. Karen is recovering well. In fact, they’ve already transferred her back to her home here in 3206.
What an experience today was! During delivery I counted 16 people in the room performing different tasks. Everyone took part in the miracle of Max and Kate’s birth.
More when we’re not so exhaused. For all you facebook people…there are some pics on Karen’s facebook page. I’ll post some pics on this site when I’m able.
10.22.08
Today is the Day
Chad: We learned this morning that they will take the babies this afternoon at 3:00pm. They look great. Karen is feeling a little better as well, but the infectious disease doctors are concerned about Karen’s “levels”. She has an infection somewhere and they can’t find it. Please say prayers for us this afternoon.
The babies are 31 weeks now. They weighed 3lbs each two weeks ago, so we’re hoping they are closer to 4lbs now. We’ll meet them in a few hours.
Big decision
Chad again: Karen had another tough day. She feels like she has the flu, but thus far all of her tests have come back negative. Her amnio results are all negative as well. One thing is certain, she has been miserable and no one is exactly sure whats going on. There appears to be an infection somewhere in her body, but doctors from several departments haven’t been able to find it. Karen and I made the decision early this evening to request that the Magnesium drip be removed. She has been on the Mag for the entire 8 weeks. It’s purpose is to curtail or control contractions. Mag can cause lots of nasty side effects which to this point Karen has seemed immune to. Her dosage was upped to the maximum about a week ago when her cervix dropped down to a 5. Since then she hasn’t felt well at all. She’s off the Mag, off the Procardia (controls blood pressure), and off a couple of antibiotics. We’re taking a chance here, but everyone feels that Max and Kate will be fine even if they come in the next few days. Everyone also agrees that Karen has done all she can do and has been very strong. Now, we’re just waiting to see what happens. Karen is feeling a little better already. Contractions could start in the next couple of days…or be several weeks away. We just don’t know, because she hasn’t been without the mag in 8 solid weeks. Say a prayer for all of us tonight. Karen is confident that it was time to let God decide when Max and Kate will arrive.
More later.
10.19.08
Tough few days
Hi Ya’ll … Chad here. The fact that I’m writing again is a pretty good indicator that Karen is having a tough time again. She’s been pretty sick for a few days. Yesterday she started feeling really bad…body aches, etc. They are doing a number tests to make sure everything is okay. They suspect she might just have an infection of some sort. They did an amniosyntesis this morning. Funny, made me think of the guy who spoke in devotional last Wednesday and thought he and his wife were so Godly for refusing the amnio test. Shortly after he said that I left devotional because I didn’t need to hear HIS story…got one of my own. My wife was brave enough to take the amnio test without flinching. We trust in God, but we also trust in modern medicine and doctors who lecture at Harvard. Keep Karen in your prayers. Max and Kate look great still so we’re thrilled about that. The ultrasound tech this morning reminded us for the hundredth time that “we’re going to have our hands full with these two.” Since the beginning everyone has commented on how Max and Kate are by far the most active babies they’ve ever seen. Karen’s going to be okay as well. As a testament to how much of a blessing she is to everyone – several of the nurses cried yesterday after seeing Karen not feeling well. They are so used to her smiling face. She’s been here 8 weeks and has blessed all of these women who take care of her. They take very good care of her.
More as we learn.
10.17.08
OK – so I havent written in a few days and a few of you have called or emailed with your concerns (thanks for keeping up with us by the way). As of now, there is no change, which is a good thing! I have been a little under the weather this week – probably due to the increase in the meds and all these fluids going through my body. A little extra swelling, blood pressure not cooperating, and just being plain tired – how you get tired when you lay in bed all day is surprising to me, too! I did have all kinds of fun lab tests done today, and everything came back great. Things could be much worse, and I am just grateful that we keep pushing along. In fact, I think I have everyone around here a little confused. All the nurses and doctors thought these babies would be here by now, yet here we are. I should have started dilating weeks ago, but nothing. We have overcome all the odds and statistics.
Chad did take a brief tour of the NICU on Sunday, and to my relief, he came back very relieved. The babies that are close in size to what Max and Kate are measuring right now are all doing great, and “just looked like little babies” according to Chad. We are both starting to get very excited about seeing these little guys and starting the crazy life that we know is coming very soon. It feels great to know that we are past the point of worrying, and just taking it day by day. Of course, we still would like to make it at least 2 more weeks (32 weeks) and ideally would rather have them come at 34-36 weeks, so that any time (hopefully none) in the NICU will be short.
I am scheduled for another ultrasound on Tuesday, but may have one tomorrow just since I have been feeling a little off kilter. The babies still look great on the monitors, though, and they are just as happy as can be. The doctors seem very excited that they have not been affected at all my the meds. I have a feeling these two may give Izzy a run for her money – they are resilient little things as well. I am so proud of all of my family, especially Chad, who has taken on life as a single dad with a brand new job and a wife in the hospital, and still has a smile on his face every time he walks through this door. I am so lucky and grateful for him!
We’ll keep you updated!
10.10.08
Living Day by Day
my salvation comes from him.
10.07.08
Ultrasound Update 10/7
Just had my weekly ultrasound. My cervix is back down to a 9, but still no dilation – so good news. The ultrasound tech also measured the babies again, and Max is approximately 2 lbs. 15 oz., and Kate (AKA “Piglet”) is 3 lbs. 4oz. They are both measuring above the 50th percetile for gestational age (avg. for 29 weeks is about 2.5 lbs.), and Kate is in the top 65% for weight. We are so excited that they are getting so big and being so active. Unfortunately, I don’t think my belly is so appreciative. I have had some issues with my skin cracking and bleeding because it is growing so fast, but the doctor is trying some pharmaceutical creme mix that seems to be helping. If that is all I have to put up with to get these babies here safe, then that is no big deal! Again, thanks for your continued prayers and support – I know we wouldn’t be here without it!





